There are some days when everything just goes smoothly, but, honestly, that’s few and far between. I have had many days when I needed to step aside and just breathe. I know that I can’t be the only one. It doesn’t just happen to special needs parents. I imagine that it happens to many parents. Anxiety is real as well as Depression. Sometimes all it takes is one little bit a joy to make it much easier. I had to go to the store the other day after work. I picked up my kids first. I was exhausted. It was a rough day. My son helped out one of the workers at the store. He was able to keep a cardboard box. He walked around the store in the cardboard box. That made his day. Something as simple as a cardboard box made this child extremely happy. If he can do, maybe we could too. Just find the one thing that makes you happy that day.
Today is International women’s day. For all the mom’s that have a little extra on their plate.
For anyone interested, I had an article posted on fun107.com about Noonan syndrome. It’s under the title of Southcoast voices. I’m hoping that it draws attention to Noonan syndrome. If you would like to learn more about what it’s like as a parent of someone with Noonan syndrome, I suggest reading my book “A Day in the Life”. It’s on amazon and Barnes and Noble online. Look under the name Tiffany Botelho. My book is not just for awareness. I’m hoping to empower other parents. It doesn’t matter the situation. We have good days and bad days. There are some days when we feel like complete failures and other days when we are the best parent in the world. It’s okay to feel all those feelings. Embrace the weird.
I have been loving sharing the noonan syndrome awareness facts. Even when the month ends I will continue to raise awareness with my book. Spreading the love for our noonies.
My family won the lottery with this fact. All 3 kids have it.
There are several mutations. My family has SOS1 which happens in about 10% of cases.
Scoliosis is very common in a lot of people. It’s no surprise that it would be common in Noonan syndrome as well especially given low muscle tone and hyper mobility.
My boys tend to tire easily because they have low muscle tone and hyper mobility.